I am what I should have said much earlier
So it takes me a year or two to post the “You Are What You Say” lecture by Dan Frankowski, and the day after, a much more up-to-date paper is in the news. The paper is by Paul Ohm and is available here, or you can read an Ars Technica article about it if you’d prefer the (geeky) executive summary. The paper also sites the work of Latanya Sweeney (as did the Frankowski lecture), with this defining moment of the contemporary privacy debate, when the Massachusetts Group Insurance Commission (GIC) released “anonymized” patient data in the mid-90s:
At the time GIC released the data, William Weld, then Governor of Massachusetts, assured the public that GIC had protected patient privacy by deleting identifiers. In response, then-graduate student Sweeney started hunting for the Governor’s hospital records in the GIC data. She knew that Governor Weld resided in Cambridge, Massachusetts, a city of 54,000 residents and seven ZIP codes. For twenty dollars, she purchased the complete voter rolls from the city of Cambridge, a database containing, among other things, the name, address, ZIP code, birth date, and sex of every voter. By combining this data with the GIC records, Sweeney found Governor Weld with ease. Only six people in Cambridge shared his birth date, only three of them men, and of them, only he lived in his ZIP code. In a theatrical flourish, Dr. Sweeney sent the Governor’s health records (which included diagnoses and prescriptions) to his office.
And from the “where are they now?” file, Sweeney continues her work at Carnegie Mellon, though I have to admit I’m a little nervous that she’s currently back in my neighborhood with visiting posts at MIT and Harvard. Damn this Cambridge ZIP code.